Support groups/organisations

Australia

The Compassionate Friends (TCF) - SA, Victoria, Queensland, NSW          

SANDS - http://www.sands.org.au

Miracle Babies - http://www.miraclebabies.org.au

SIDS and KIDS - http://www.sidsandkids.org

Australian Centre for Grief and Bereavement - http://www.grief.org.au

Very Special Kids - http://www.vsk.org.au/

Victorian Paediatric Palliative Care Program - http://www.rch.org.au/rch_palliative/home/The_Victorian_Paediatric_Palliative_Care_Program/

Palliative Care Australia (2010) Journeys-Palliative Care for children and teenagers

http://www.palliativecare.org.au/Journeyschildren/DownloadJourneys.aspx

UK

Bliss - http://www.bliss.org.uk/help-for-families/

Bliss - the special care baby charity (2010) Making Critical Care Decisions for your Baby http://www.togetherforshortlives.org.uk/assets/0000/1111/Bliss_-_Making_Critical_Care_Decisions_for_Your_Baby.pdf

Together for Short lives - http://www.togetherforshortlives.org.uk

US

Caring Connections - http://www.caringinfo.org/i4a/pages/index.cfm?pageid=3334

Partnership for parents - http://www.partnershipforparents.net/

End of life/Palliative Education Resource Centre - http://www.eperc.mcw.edu/EPERC

Children's Hospice and Palliative Care Coalition - http://www.chpcc.org/

Organ Donation

DonateLife - http://www.donatelife.gov.au/

DonateLife SA - http://www.sahealth.sa.gov.au/wps/wcm/connect/Public+Content/SA+Health+Internet/Health+services/Donate+Life/

Better Health Channel Organ and Tissue Donation - http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/Organ_and_tissue_donation

Transplant Australia - http://www.transplant.org.au/Default.aspx?PageID=1

Funeral Planning

• Journeys - Section 4 (The Next Leg)

http://www.palliativecare.org.au/Portals/46/JOURNEYS/Journeys%202010%20-%20Section%2004.pdf

• Journeys - Tool 6 Selecting a Funeral Director

http://www.palliativecare.org.au/Portals/46/JOURNEYS/Journeys%20-%20Tool%206%20-%20Selecting%20funeral%20director.pdf

Aboriginal and Torres Strait Islander peoples' resources 

• Oxfam Australia - Close the Gap
• Palliative Care: Going home to country
• Palliative Care Australia - About Pain and Pain Management
• Wanem morphine  

Dying and death

• Palliative Care Australia - About the Process of Dying
• Palliative Care Australia - What can I say, What can I do? When someone I know is living with a terminal condition
• Palliative Care Victoria - What to do when someone dies
• LifeCircle Australia - http://www.lifecircle.org.au/

Grief and bereavement

• Australian Centre for Grief and Bereavement
• The Compassionate Friends (Australia)
• National Association for Loss and Grief
• National Centre for Childhood Grief
• Now what? Understanding grief

International palliative care links

• Asia Pacific Hospice Palliative Care Network
• European Association for Palliative Care
• Hospice New Zealand
• International Association for Hospice and Palliative Care
• International Observatory on End of Life Care
• World Health Organization - palliative care
• Worldwide Palliative Care Alliance

Medicines

• Facts about morphine and other opioid medicines in palliative care

Multilingual resources

• Palliative Care Australia multilingual resources

National Palliative Care Program projects

• National Palliative Care Program
• National Palliative Care Strategy
• Palliative Care Clinical Studies Collaborative
• Palliative Care Curriculum for Undergraduates (PCC4U)
• Palliative Care Knowledge Network - CareSearch
• Program of Experience in the Palliative Approach (PEPA)
• Respecting Patient Choices
• Rural Palliative Care Project
• CEBPARAC

Paediatric palliative care

• Journeys: Palliative Care for Children and Teenagers
• Make-a-wish foundation
• New South Wales - Bear Cottage
• Starlight Foundation
• Victoria - Very Special Kids
• Victorian Paediatric Palliative Care Program
• What is paediatric palliative care?

Pain and symptom control

• Australian Pain Society
• Pain and symptom management

Professional organisations

• Australasian Chapter of Palliative Medicine
• Clinical Oncological Society of Australia
• Palliative Care Nurses Australia

Research

• Centre for palliative care
• Centre for palliative care research and education

Support and information groups

• The Compassionate Friends (Australia)
• Kids Helpline

Bibliography - books 

Crawford, S. Cromwell. Dilemmas of life/death: Hindu ethics in a North American context. SUNY press 1995

Davis, Deborah. Loving and letting go: for parents who decided to turn away from aggressive medical interventions for their critically ill newborns. Centering Corp 1992

Dunn, Hank. Hard choices for loving people. CPR, Artificial Feeding, Comfort Care,and the Patient with a Life-Threatening Illness. A&A publishers. 2009. http://hankdunn.com

Journal articles: 

Ankeny, R. A. R., Clifford, R. R., Jordens, C. F. C. C., Kerridge, I. H. I., & Benson, R. R. (2005). Religious perspectives on withdrawal of treatment from patients with multiple organ failure. The Medical Journal of Australia, 183(11-12), 616-621.

Bulow, H.-H., Sprung, C. L., Reinhart, K., Prayag, S., Du, B., Armaganidis, A., et al. (2007). The world"s major religions" points of viewon end-of-life decisionsin the intensive care unit. Intensive Care Medicine, 34(3), 423-430. doi:10.1007/s00134-007-0973-8

Hatzinikolaou, N. (2003). Prolonging life or hindering death? An Orthodox perspective on death, dying and euthanasia. Christian Bioethics, 9(2-3), 187-201.

Hedayat, K. K. (2006). When the spirit leaves: Childhood death, grieving, and bereavement in Islam. Journal of Palliative Medicine, 9(6), 1282-1291. doi:10.1089/jpm.2006.9.1282

Quilter J (1992) The Babies Doe: Sanctity of Life or Quality of Life? Bioethics Outlook 3: 4-7.

Sachedina, A. (2005). End-of-life: the Islamic view. The Lancet, 366(9487), 774-779. doi:10.1016/S0140-6736(05)67183-8