News

  • Latest updates

    Sign up to The Royal Children's Hospital (RCH) Newsletter for regular updates about what is happening at the RCH diabetes clinic or any diabetes updates. 

    Sign up to the RCH diabetes newsletter

    May 2024

    PEER SUPPORT INFORMATION

    The Dabetes Victoria peer support team recently sent us the following information including the contact details for the co-ordinator.  Please contact Maria if you have any questions about this.

    “This group is aimed ideally between the ages of 11 and 15 years, however, anyone under 18 is welcome. Whether your child is newly diagnosed or a T1D veteran, this is an opportunity to join others for fun around shared interests, such as Board games, art and craft activities, they can share their favourite recipe or chat about their favourite sport. The best way to access our events and details is through a social platform called Meetup.com (free to join). Search for Melbourne TI Diabetes Young Person’s Diabetes group. You may contact Maria on 0429 778 810 to help navigate through this platform.”

    Meetup Link: https://www.meetup.com/melbourne-t1-young-persons-diabetes-meetup-group/events/300796378/

    Maria’s email: mariacondemi@live.com.au

    Maria’s number: 0429 778 810

     

    March 2024 

    There are some special occasions on at the moment and coming up, check our special occasions page to help with planning and looking after your diabetes on these days! 

    February 2024 

    T:SlimX2 Software update 

    Tandem T:SlimX2 has a new software update. New features include; 

    • Updated feature of pump sounds
    • A 'sensor expiring soon' notification on your pump for your continuous glucose monitor (CGM). This will now show at 24 hours remaining instead of 6 hours and also at 2 hours as well as 30 minutes before your sensor session will finish. 
    • Exercise timer: set the timer for a particular exercise duration so that you do not need to remember to stop activity when you are no longer needing the exercise activity mode on. 
    • Activity transition: you do not need to stop Sleep Activity to turn Exercise Activity on

    Tandem CIQ 7.7 Update information

    Medtronic making changes to available infusion sets 

    The table below outlines the products that are to be discontinued and the suggested alternative infusion set that may be a suitable substitute for transition to.

    The main change from the discontinued product to the alternative product is the length of the infusion set tubing. In most cases the needle length remains unchanged which is generally the important user factor. You can order your current set until April 1st 2024 from their local pharmacy.

    Medtronic lines

    January 2024 

    Promising research regarding type 1 diabetes

    There have been several announcements in the mainstream media over recent months about research regarding type 1 diabetes.  Whilst any positive news is exciting, it is important to note that there are many steps that need to occur between an initial idea proving positive at the concept stage to actual changes occurring in the way patients are managed. The process, from initial research, through to animal and then several stages of human clinical trials can take around 10-20 years to complete.

    The length of time and mandatory steps required for clinical research is necessary as a concept that works at the cellular level in a petri dish may not actually transfer to safe clinical care for patients. Therefore, when reading any reports of positive research news, it is important to note at which stage of the research project they are at as this will give you some idea of how long it might be until the research results in changes to patient care.

    If you have any questions about diabetes research, or studies being undertaken at RCH please ask your Endocrinologists at your next clinic appointment

    Are you still using an Abbott Neo meter?    

    If you are using FreeStyle Libre 2 CGM and still using an Abbott Neo Meter, you can request a free Libre Reader. It is a touch screen, rechargeable glucose & ketone meter using the same strips as the Neo Meter

    To upgrade to the Libre Reader, visit https://www.freestylelibre.com.au/startmysensor

    December 2023 

    Research update: Baricitinib drug shows promise for suppressing type 1 diabetes progression in people with newly diagnosed type 1 diabetes

    You may have seen details in the news recently about some promising results from a study called the BANDIT trial. This world-first Australian clinical trial has shown that a commonly prescribed rheumatoid arthritis drug, baricitinib, can preserve the body’s own insulin production and possibly suppress the progression of type 1 diabetes (T1D) in those newly diagnosed with the condition.

    Whilst these results are exciting it is important to note that these are preliminary results from the first year of this trial. As there is further work to be done in this study it is not yet appropriate to change our clinical care until the trial is fully completed and all results appropriately analysed. We will let you know when this happens but is likely to be sometime in late 2024.

    If you have further questions about this study, or other studies being undertaken at RCH please ask your Endocrinologists at your next clinic appointment.

    November 2023

    School Action and Management Plans (Plan) for 2024

    All children/students with type 1 diabetes attending early childhood settings, primary or secondary schools in Victoria need to have a current Diabetes Action and Management plan in place to ensure that their diabetes care needs are met. These management have been developed by Diabetes Victoria, The Royal Children’s Hospital (RCH) and Monash Children’s Hospital, are based on current best practice paediatric guidelines and are reviewed yearly.

    See our school page to organise your child's 2024 Diabetes School Action and Management Plan 

    Medtronic 640G users: 

    Medtronic have advised that they will discontinue their 640G pump from 31st December 2023. This means that from 1st January 2024, they will be unable to replace any MiniMed 640G with a new MiniMed 640G. People using a Medtronic 640G insulin pump will instead be provided with a MiniMed 780G insulin pump in manual mode, together with appropriate training to cover their remaining warranty period.

    Medtronic will continue to offer people supplies and technical support for the pump they are currently using. 

    For more information, please contact Medtronic Customer Service: 1800 668 670

    For Dexcom G6 Users: 

    Dexcom is aware that the G6 app has stopped sharing data with followers immediately after the G6 iOS 1.11.0 app update. This issue only affects the G6 iOS app version 1.11.0. The G6 app user will not experience any issues, however the followers will see “no data” displayed in the follow app and dashes in the follow iOS widget.

    To resolve the Follow app issue, please follow the steps below to resume data sharing:

    1. Open G6 iOS USER app
    2. Tap on Share in the upper left corner
    3. Tap the Share toggle to turn if OFF
    4. Tap the Share toggle to turn it back ON
    5. Check with the Follower to make sure data is displaying
    6. Wait up to 10-15 minutes for data to resume

    If you continue to experience issues in the follow app after performing the steps above, please let us know by contacting us on 1300 851 056 or emailing diabetes.techsupport@amsl.com.au.

    Please contact AMSL Dexcom G6 team to notify them that you have experienced this issue. They are asking for the following details: 

    1. Dexcom G6 Username = *(open the Dexcom app, tap on settings > account, scroll down to login info)
    1. Dexcom G6 transmitter SN =*(open the Dexcom app, tap on settings > transmitter)
    1. Dexcom G6 app Revision =*(open the Dexcom app, tap on settings > about)
    1. Dexcom G6 user’s phone model =*(go to settings> general > about)
    1. Dexcom G6 user’s phone iOS Version = *(go to settings> general > about)

    October 2023

    Online training for family and friends: 

    Do you sometimes wish your family members and friends knew a little more about diabetes so they could feel confident providing care and support? Diabetes Australia have developed an online learning module aimed specifically at family, friends, babysitters, and nannies who might be responsible for looking after a child with type 1 diabetes. This online module takes an hour to complete and covers topics such as:

    • Understanding diabetes
    • Monitoring glucose levels
    • Insulin delivery devices
    • Diabetes Highs
    • Diabetes Lows
    • Eating to manage diabetes
    • Being active
    • Being supportive

    You can access this online module here Education & events - Diabetes programs - Diabetes Australia and look for the training titled ‘Looking after a child with diabetes’.

    Medtronic travel loan insulin pump program: 

    The Medtronic Travel Loan Program provides you with a spare pump to carry with you while you are away on holiday overseas or in remote locations where you are unable to receive a replacement pump should your pump fail.

    Contact: australia.diabetes@medtronic.com. Medtronic cannot guarantee the availability of a specific model of the loan pump provided.

    Medtronic ask to submit your application two weeks prior to the travel date but with the holidays approaching earlier than this to avoid delays.  

    Common Questions about the Medtronic Travel Loan Program:

    Q: Can I open the pump package up and input the device settings even if I don’t end up needing to use it?

    A: Yes you may – safety first!

    Q: How long do I have to return the pump after I return form my time away?

    A: 14 days

    Q: How long may I travel with the loan travel pump?

    A: Up to 90 Days

    Fiasp insulin to remain on the Pharmaceutical Benefits Scheme (PBS)

    On 18 September, Minister for Health and Aged Care, Hon Mark Butler MP, announced that Fiasp insulin will continue to be available on the Pharmaceutical Benefits Scheme (PBS) from 1 October 2023 for people living with diabetes.

    More information can be found here; Fiasp penfill lisiting on the PBS

    JDRF new book release

    JDRF have released a new guide on wellbeing for parents and carers, titled "If you're Okay, They're Okay".

    This is a free download providing advice on: 

    • Support to help parents raise their children with confidence
    • Age-appropriate expectations for children living with T1D
    • Tips for dealing with the family’s emotional challenges
    • Practical advice on common issues 

    JDRF Parent Wellbeing Guide 

    September 2023

    Essential medical equipment on off annual payment 

    Did you know that Services Australia (Centrelink) offer an annual payment of $189 dollars to eligible individuals to assist with the electricity cost associated with essential medical equipment. If you are using an insulin pump this may include you. More information about this payment and who is eligible can be found here:  Essential Medical Equipment Payment - Services Australia or speak to your local Centrelink office staff.

    Please note approval for this payment can be provided by your GP.

    August 2023

    Medtronic mobile app update required 

    Medtronic have informed us that an update is required to CareLink™ Connect app

    This is copied from a recent Medtronic notification

    We want to provide an update about the outage. We have installed additional servers to address the CareLink Connect app outage that resulted from increased usage and data sharing, and we want to inform you that there’s a new version of the app available for your patients to download on their compatible device. We recommend that they update to this new version as quickly as possible, as it contains some important updates to improve the experience. We have let your patients know this key information also. 

    You may be required to log in again on your CareLink account after this update. If you require support with the update or have subsequent upload problems, please contact Medtronic helpline on  1800 777 808

    April 2023

    Get Active Victoria is a Victorian Government initiative to support eligible families receive up to $200 to cover the cost of registration fees for organised sport/active recreation. 

    To be eligible for a voucher your child/dependent must be: 

    • under 18 years of age 
    • be a Victorian resident 
    • have a valid Health Care Card/Pensioner Concession Card 
    • have a valid Medicare card 

    For more information go to Get Active Victoria 

    RCH Diabetes Newsletters

    April 2024

    RCH Diabetes Newsletter 9

    Topics include: 

    • BANDIT trial update 
    • My RCH Portal 
    • Travelling
    • Making the most of your Continuous Glucose Monitor
    • Preparing to transition into adult diabetes care 
    • Supportive resources for children and teenagers with a new diagnosis of type 1 diabetes  

    December 2023 

    RCH Diabetes Newsletter 8

    Topics include: 

    • JDRF video link - flying with type 1 diabetes 
    • Getting ready for the new school year 
    • Revised clinic glucose targets
    • Diabetes distress 
    • Options for funding an insulin pump  

    August 2023 

    RCH Diabetes Newsletter 7

    Topics include: 

    • Ypso insulin pumps coming to RCH diabetes clinic
    • Information on insulin for Life Australia - donating insulin and diabetes supplies 
    • Research opportunities
    • Exercise and diabetes 
    • Get Active Victoria initiative 
    • Diabetes Victoria Camps 
    • Diabetes Team updates 

    March 2023

    RCH Diabetes Newsletter 6

    Topics include: 

    • Special occasions: Ramadan, Passover and Easter 
    • Research updates 
    • Managing sick days with diabetes 
    • Driving and Diabetes: Above 5 to Drive 
    • Planning for an insulin pump upgrade 
    • Diabetes Allied Health Team changes 

    Earlier newsletters

    COVID-19 and diabetes

    Check into this page for information related to diabetes and COVID-19.

    COVID-19 updates

    Older updates

    Read through all previous diabetes updates in the yearly pages below.

    2023 updates 2022 updates 2021 updates 2020 updates 2017 updates