In this section
Our team is dedicated to helping you and your family manage your diabetes effectively so that you can lead a fulfilling and healthy life. For the patients and families of the Royal Children's Hospital, this website provides guidelines for managing your diabetes at home. The purpose of these resources is to help you be independent with everyday management of diabetes such as dose adjustment, managing sick days and pump management.
Being diagnosed with diabetes is something that can affect the whole family and there are many uncertainties and fears that can emerge with this. Here at RCH, we have a large team of professionals that are here to help you. We care for infants, children and adolescents with all types of diabetes including
All young people with type 1 diabetes require injected insulin. Having type 1 diabetes means you or your child cannot make enough insulin. Insulin doses are determined by blood glucose testing.
As a patient of the RCH, you will meet with a diabetes dietitian, a diabetes social worker and a diabetes nurse educator who will teach you how to care for you or your child’s diabetes. It is very important that the adults who live and care for your child on a daily basis are available for these education sessions.
If you have been admitted outside usual business hours (after 4pm Monday to Friday or the weekend) the diabetes educator will come and see you as soon as possible the next working day. In the meantime the ward nurses will support you with your child’s diabetes care.
At diagnosis you will have specific diabetes self-care skills to learn:
Once home you will be in contact with a diabetes nurse educator for BGL reviews and adjustment of insulin. Your calls will reduce in frequency as you gain confidence in day to day diabetes management and you begin to alter the insulin based on the record book yourself. We will support you in this process.
You may return for further outpatient appointments with the Diabetes Allied Health team in the days/weeks to follow to complete initial education. Your first doctor’s appointment should be booked about 1-2 months after diagnosis; you will also see a diabetes nurse and dietitian. Thereafter an appointment will occur every 3-4 months until your child transitions to an adult diabetes service.
If you would like any further information, please call our diabetes office on 9345 6661 between 8.00am and 4.00pm Monday-Friday.
On April 1 2017 the Federal Government announced that continuous glucose monitoring (CGM) would be fully subsidised for many children and young adults up to 21 years of age (
Press Release). There is specific criteria for the subsidy to apply (
Criteria), and many of our patients are eligible.
The RCH has received a lot of interest in CGM from our families. In order to accommodate requests for CGM we have been able to employ an extra nurse to assist with the CGM starts.
At this time we have been able to decrease our waitlist so that there is only a few weeks between applying for a CGM and your admission. If you have any questions about the timeframe please contact your diabetes nurse educator.
If you are unsure about what CGM is or does,
please review the section of CGM on the type 1 diabetes page and watch at
the webinars about CGM on the webinars page
If you would like to apply for a CGM and have a NDSS eligibility form,
please email us via the details on our contact us page.
The Diabetes at School online education
package has been developed by Diabetes Victoria, working together with the
Royal Children’s and Monash Children’s hospitals.
The package consists of three five-minute
self-directed learning modules that can be easily accessed by all school staff.
The modules help to ensure that all school staff understand type 1 diabetes and
how it impacts on a student’s day to day life, are aware of Diabetes Action and
Management plans and know how to respond appropriately to students experiencing
hypoglycaemia and hyperglycaemia. There are also a number of resources
available on this platform for staff wanting to deepen their knowledge of type
You can access the online
modules through the following link: https://diabetesatschool.com.au/ .You will need to register as a school staff
member or a parent/carer.
JDRF welcomes type 1 diabetes community members and their families, of all ages and stages, to join them for a first-of-its-kind conference, with sessions designed for what you really care about!
JDRF Type One Summit brings together a stellar team of T1D experts, healthcare professionals, and researchers to share their expertise on the latest treatments, research breakthroughs, and the psychosocial aspects of living (and thriving) with T1D. Information stations will be open throughout the day for you to learn about research and clinical trials, and meet with medical device partners.
Whether you are dealing with a new diagnosis, have lived with T1D for many years, or care for someone with T1D, you’ll find value (and some new friends) at the Summit. JDRF Type One Summit caters for children, teens and adults with T1D, as well as parents, grandparents and carers. Kids (5+) can join their all-day activities program, or attend the sessions with carers.