In this section
Our team is dedicated to helping you and your family manage your diabetes effectively so that you can lead a fulfilling and healthy life. For the patients and families of The Royal Children's Hospital (RCH), this website provides guidelines for managing your diabetes at home. The purpose of these resources is to help you be independent with everyday management of diabetes such as dose adjustment, managing sick days and pump management.
Being diagnosed with diabetes is something that can affect the whole family and there are many uncertainties and fears that can emerge with this. Here at the RCH, we have a large team of professionals that are here to help you. We care for infants, children and adolescents with all types of diabetes including
All young people with type 1 diabetes require injected insulin. Having type 1 diabetes means you or your child cannot make enough insulin. Insulin doses are determined by blood glucose testing.
As a patient of the RCH, you will meet with a diabetes dietitian, a diabetes social worker and a diabetes nurse educator who will teach you how to care for you or your child’s diabetes. It is very important that the adults who live and care for your child on a daily basis are available for these education sessions.
If you have been admitted outside usual business hours (after 4pm Monday to Friday or the weekend) the diabetes educator will come and see you as soon as possible the next working day. In the meantime the ward nurses will support you with your child’s diabetes care.
At diagnosis you will have specific diabetes self-care skills to learn:
Once home you will be in contact with a diabetes nurse educator for BGL reviews and adjustment of insulin. Your calls will reduce in frequency as you gain confidence in day to day diabetes management and you begin to alter the insulin based on the record book yourself. We will support you in this process.
You may return for further outpatient appointments with the Diabetes Allied Health team in the days/weeks to follow to complete initial education. Your first doctor’s appointment should be booked about one–two months after diagnosis; you will also see a diabetes nurse and dietitian. Thereafter an appointment will occur every three–four months until your child transitions to an adult diabetes service.
If you would like any further information, please call our diabetes office on 9345 6661 between 8am and 4pm Monday–Friday.
The Department of Education and Training (Victoria) require the Diabetes Victoria Diabetes Management Plan to be used in all early childhood education and care services, primary and secondary schools in the government, Catholic and Independent sectors in Victoria. These management plans are based on current best practice evidence for diabetes care for young people with type 1 diabetes..
To request a 2020 school or early childhood education management plan from a diabetes nurse educator please click here. Please note we require your 2020 grade level on the form and you must be an RCH patient.
Once the form is completed a DNE will complete the school plan for you and will post it to you in the mail. Please allow two weeks for this to occur.
To view the school plans as a blank PDF please click here to be taken to the Diabetes Victoria website where you can print and complete your own school plan to then be signed by your diabetes treating team.
The Diabetes at School online education package has been developed by Diabetes Victoria, working together with the RCH and Monash Children’s hospitals.
The package consists of three five-minute self-directed learning modules that can be easily accessed by all school staff. The modules help to ensure that all school staff understand type 1 diabetes and how it impacts on a student’s day to day life, are aware of Diabetes Action and Management plans and know how to respond appropriately to students experiencing hypoglycaemia and hyperglycaemia. There are also a number of resources available on this platform for staff wanting to deepen their knowledge of type 1 diabetes.
You can access the online modules through the following link: https://diabetesatschool.com.au/. You will need to register as a school staff member or a parent/carer.
Information on name change from Lantus (insulin glargine) to Optisulin (insulin glargine)
There will be a change over period from 1 January, 2020 until the 30 June, 2020 where Lantus is still available. From 1 July, 2020 Lantus will be de-listed from the PBS and Optisulin will be prescribed by your endocrinologist in its place.
On April 1 2017 the Federal Government announced that continuous glucose monitoring (CGM) would be fully subsidised for many children and young adults up to 21 years of age (Press Release). There is specific criteria for the subsidy to apply (Criteria), and many of our patients are eligible.
The RCH has received a lot of interest in CGM from our families. In order to accommodate requests for CGM we have been able to employ an extra nurse to assist with the CGM starts.
At this time we have been able to decrease our waitlist so that there is only a few weeks between applying for a CGM and your admission. If you have any questions about the timeframe please contact your diabetes nurse educator.
If you are unsure about what CGM is or does,
please review the section of CGM on the type 1 diabetes page and watch at
the webinars about CGM on the webinars page.
If you would like to apply for a CGM and have a NDSS eligibility form,
please email us via the details on our contact us page.
Continuous Glucose Monitoring Initiative: FreeStyle Libre added and eligibility criteria streamlined from 1 March 2020 (Press Release)
information regarding the Terms and Conditions of your cloud based data.
The RCH takes your private information very seriously. It is
important when some technology is agreed as a treatment option, you have read
and understood the relevant company’s terms and conditions of use.
current diabetes technologies such as insulin pumps and continuous glucose
monitors rely on cloud based technology to allow both the user, and the
treating team to view the data. The ability to review this data, and share it
with the treating team is vital to managing diabetes. It is very important that
you are aware of how these companies manage your data. When you register to use
the uploading or recording facility of the device, the company will ask you to
agree to a series of terms and conditions. Within these terms and conditions are
privacy statements about how the companies may use the data. For some systems,
the RCH is required to agree on behalf of a user who is already registered.
This is so we can see the data to provide clinical advice, but this does
override the terms agreed to by the user at initial registration.
There is no
suggestion that any data is or has been used inappropriately, but we strongly
recommend that families are aware of what is being agreed to by accepting terms