Epilepsy related links
Associations and Societies
- Epilepsy Foundation Victoria (EFV)
Victorian-based organisation for people affected by epilepsy. Part of Epilepsy Australia, a group of similar state-based epilepsy organisations.
Excellent site with lots of general information and good links to other centres.
www.epinet.org.au/
- Epilepsy Action NSW-based, national organisation for people affected by epilepsy.
Excellent site with lots of general information and good links to other centres.
www.epilepsy.org.au/
- Epilepsy Queensland Inc.
Queensland-based organisation for people affected by epilepsy. Part of Epilepsy Australia, a group of similar state-based epilepsy organisations.
Excellent site with very good general information and an excellent children's page.
www.eqi.org.au/
- Epilepsy Action (formerly British Epilepsy Association)
Excellent overview of epilepsy, particulary epilepsy in children and surgery.
www.epilepsy.org.uk/
- Epilepsy Society of Australia (ESA)
National society of professionals working in the field of epilepsy. The site contains information on upcoming meetings, training opportunities and Australian health policy issues related to epilepsy.
http://www.epilepsy-society.org.au/
- American Epilepsy Foundation
Information on this site is orientated toward the United States and may not be pertinent to Australian families.
Epilepsy Foundation (US)
- National Society for Epilepsy (NSE)
Largest UK medical charity for epilepsy.
www.epilepsynse.org.uk
- Association for Children with a Disability (ACD)
Information, support and advocacy organisation for children with a disability and their families, in Victoria.
www.acd.org.au/
Information on services available in metropolitan and rural Victoria
http://www.acd.org.au/information/keycontact.htm
- International League Against Epilepsy (ILAE)
The ILAE is an international professional organisation linked to national epilepsy societies around the world and the WHO. The ILAE's objectives are to advance and disseminate knowledge about epilepsy, to promote research, education and training, and to improve services and care for people with epilepsy. The site contains links to some international epilepsy publications and a glossary of epilepsy syndromes, the latter being medically-orientated.
http://www.ilae-epilepsy.org/
- International Bureau for Epilepsy (IBE)
Is an organisation of laypersons and professionals interested in medical and non-medical aspects of epilepsy. Good international links page.
www.ibe-epilepsy.org
Resources
- Packard Children's Hospital
Excellent site for information on the ketogenic diet.
www.stanford.edu/group/ketodiet/
- Paediatric Epilepsy Centre, St. Louis
Links for ketogenic diet and epilepsy surgery and very good links with other overseas centres.
www.neuro.wustl.edu/epilepsy/
- Epilepsy FAQ
Comprehensive FAQ on epilepsy.
www.faqs.org/faqs/medicine/epilepsy-faq/
- Royal Children's Hospital health resources (RCH)
Family Resource Centre, Resource Centre for Child Health and Safety (CHAS) and RCH Fact Sheets
RCH Parent info
RCH Kids health info for parents
- Assessing Fitness to Drive
Site for the National Road Transport Commission and Austroads, the national organisations that publish medical standards and guidelines for patients with medical conditions with respect to driving private and commercial vehicles. Information regarding people with epilepsy obtaining a driver license can be obtained on pages 55-60 of the 2003 publication.
Assessing Fitness to Drive Home Page
Kids Stuff
- Little Poss Home Page
Hi, I'm Little Poss. I live in the Australian bush in a tall, tall gum tree. I love scampering along the tree branches and jumping from tree to tree. Sometimes I get wobbly and shake all over. That's because I have epilepsy. Did you know that possums sometimes have epilepsy? It's true - animals can have epilepsy and just like humans we take medicine to make it harder for seizures to start.
www.littleposs.com/
- Beach Park
British Epilepsy Association childrens home page.
www.epilepsy.org.uk/kids/index.html
- Neuroscience for Kids
A home page created by Eric H. Chudler, Ph.D for elementary and secondary school students and teachers who would like to learn more about the nervous system.
faculty.washington.edu/chudler/neurok.html