Note: this is a past research project that is now complete.  

Aim

To perform a multicentre study in 5 Australian states that aims to identify current knowledge, attitudes and reproductive and sexual health behaviours in Australian adult men and women with CF. The overarching goal is to use this information to promote the development of comprehensive health service delivery in both paediatric and adult CF services.

Project description

Cystic fibrosis (CF) has important repercussions on both male and female reproductive and sexual health, in terms of male infertility, urinary incontinence, reproductive choices and pregnancy. Yet, we know little about how this affects contemporary adults.

Eligible subjects are adults aged 18 years and older with CF whose care is coordinated by the following specialist CF services: The Alfred Hospital (VIC); The Prince Charles Hospital (QLD); The Royal Adelaide Hospital (SA); Sir Charles Gardner Hospital (WA) and Royal Prince Alfred Hospital (NSW).

Separate questionnaire-based surveys have been developed for men and women with CF. In addition to demographic data, questions cover aspects of knowledge, attitudes and behaviours in relationship to sexual and reproductive health.

Publications

Sawyer, SM and Roseby C. (2001). What they don't tell you: A young person's guide to to sexual and reproductive health issues in cystic fibrosis. 

Contact

Susan Sawyer
susan.sawyer@rch.org.au