In this section
Note: this is a past research project that is now complete.
The Optimising Pathways project investigates the ways in which
young people with chronic health conditions learn to take on more
responsibility for their health-care as they get older. That is,
the way that teenagers with conditions like asthma, diabetes,
cancer or cystic fibrosis gradually become more independent with
their own health-care as they mature.
Through Optimising Pathways we aim to learn about how young
people with chronic conditions learn to manage more of their own
health care as they mature. We are exploring the types of
difficulties this raises at school, at home and in social
situations. We also want to understand what factors can help and
hinder the process.
The Optimising Pathways project involves interviews with 35
young people, 35 of their parents, and 30 health care
practitioners. In addition to the interviews, our visual research
approach asks that the young people who participate also take some
photos for us about living with a chronic condition. A DVD
exhibition of some of these photos has been developed as part of
this project (contact Sarah Drew for further information on DVD) as
well as an
accompanying postcard (JPG 78KB).
We plan to use the information gathered to inform other young
people, parents and health care practitioners about self-management
in adolescence, and helpful ways to assist them to work well
towards this goal in the future.