In this section
Note: this is a past research project that is now complete.
The term 'transition to adult healthcare' refers
to a complex process that aims to prepare young people with chronic
health conditions with the necessary attitudes, knowledge and
skills to successfully engage in and navigate the significant
changes that accompany adolescent development and the transfer from
paediatric to adult care. This process includes the key principles
of building autonomy around healthcare, promoting self-management
skills and working towards confidential healthcare. It also
prioritises continuity of care for young people as they are
physically transferred from paediatric to adult healthcare.
This project is an exploratory study that
focuses on young people's and parents' experiences of the
transition process. It aims to recruit young people across a
diverse range of pre-determined chronic health conditions that
would be expected to require ongoing care in early adult
This research project uses a questionnaire that
has been developed purposefully for this study that asks young
people and parents to comment retrospectively on their experiences
of transition and transfer. The questionnaire includes both closed
and open-ended questions and will be completed via telephone
Two groups of key informants will be involved in
the project: young people with chronic health conditions (N=200)
requiring transfer to an adult specialty health service, and their
parent(s)/primary caregiver(s) (n=200).
This project will provide important thematic data and
statistical findings about the transition process, and will help
inform the development of a self-management and transition/transfer
intervention in the future.
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