Note: this is a past research project that is now complete.
Background
Adolescents have specific medical and psychosocial needs that
are different from both children and adults, demanding attention in
health service development and the delivery of safe, effective,
quality care. A cancer diagnosis adds immeasurable challenge to the
period of adolescence and threatens to disrupt the young person's
intended trajectory, even in survival. In planning services for
young people with cancer, it is critical to recognise the unique
complexities that face this population and actively engage them in
a consultative process to develop an increased understanding of
what is important in the delivery of effective care in an
appropriate environment.
This study aims to provide preliminary
information about the experiences and needs of adolescents with
cancer. Specific areas of investigation include:
- adolescents' informational needs at diagnosis
- preferences around decision making, experiences of and
preferences for communication
- experiences of inpatient and outpatient service delivery
- the impact that having cancer has on education and
training.
A project-specific survey has been developed,
based upon literature review and clinical experience. It elicits
quantitative and qualitative responses from young people who are
currently on treatment, and those who have recently completed
treatment. A web-based survey format has been used to better engage
participants and improve the rate of participation.
Findings from this study will highlight implications and
recommendations for the development of specific cancer services for
adolescents.
Funder
Children's Cancer Centre Foundation
Contact
Maria McCarthy
maria.mccarthy@mcri.edu.au