Information for parents and carers of young people transitioning from paediatric to adult health services.

‘A purposeful, planned process that addresses the medical, psychosocial and educational/vocational needs of adolescents and young adults with chronic physical and medical conditions as they move from child-centred to adult-oriented healthcare systems’
Society of Adolescent Medicine 2003

What Does Transition Mean for Parents and Carers?

Transition is an important change for families as well as young people. As your young person moves towards adulthood, your role as a parent or carer may gradually change. While you will continue to play an important part in their care and support, your young person may begin taking a more active role in managing their own healthcare.

The transition process is designed to help prepare both you and your young person for this change. Discussions may include:

• Understanding what to expect during the transfer to adult healthcare services and what your role will be.
• Learning about the services, supports and resources available to your young person and your family.
• Supporting your young person's growing independence while remaining involved in ways that are appropriate for their needs.
• Taking practical steps, such as establishing care with a General Practitioner (GP) and understanding any funding or service eligibility requirements.
• Exploring adult healthcare service options with your young person and their healthcare team.
• Understanding how adult healthcare services may differ from paediatric services, including different processes, expectations and models of care.
• Building confidence in the new healthcare team and the transition process.

Key Things to Remember

• You and your young person will be involved in planning the transition.
• Talk with your healthcare team about how you and your young person can prepare for the transfer to adult services.
• Make sure you have contact details and information about the new adult healthcare service before the transfer takes place.
• Know who to contact if you have questions or concerns during the transition period.
• If possible, arrange to meet the new healthcare team or visit the adult service before the transfer.
• Request copies of referral letters and any relevant medical records before your final appointment with the paediatric service.