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Best Practice in paediatric palliative care

  • Best Practice in paediatric palliative care

    Best practice in paediatric palliative care is not yet underpinned by a substantial evidence base. The Royal College of Paediatrics and Child Health in the UK describes the following essential components of paediatric palliative care;

    • Assessment and frequent evaluation of individual patient and family needs with the formulation of a care plan
    • The use of a key worker as coordinator of care
    • Involvement of a paediatrician expert in the child's condition
    • Involvement of local clinicians and nurses skilled in paediatric palliative care
    • 24 hour support of families in the management of physical and emotional symptoms
    • Regular respite
    • Emotional support of parents and siblings extending into bereavement
    • Provision of medications and aids
    • Provision of housing adaptations and equipment for use at home and at school
    • Financial assistance® 1

    Palliative Care Australia has also formulated Standards for Hospice and Palliative Care Provision in Australia although no specific mention is made of the needs of children.®2

    1. Association for Children with Life Threatening or Terminal Conditions and their Families and the Royal College of Paediatrics and Child Health. " A Guide to the Development of Children's Palliative Care Services". London 1997.
    2. Palliative Care Australia. Standards for Palliative Care Provision. October 1999 .