In this section
Royal Children's Hospital (RCH) values child and adolescent, family and
community participation in the planning, delivery, evaluation and quality
improvement of health care services in order to achieve best possible health
outcomes. RCH fosters a culture of participation in its internal
and external communities in accord with Victorian Government commitment in this
area. RCH aims to facilitate the involvement of children and adolescents
in their healthcare according to their maturity, age and any relevant law.
has shown that patient and family centred care can produce benefits such as:
decreased patient anxiety levels, faster recovery and reduced medication
Consumer Focused Care
Consumer/Patient - a person receiving healthcare from the RCH. Children and adolescents at the RCH are current or potential users of the health
care service, either directly or indirectly. It includes children and
adolescents living with a disability, those from diverse cultural and religious
backgrounds, and with varying social circumstances, sexual orientations, health
and illness conditions. This definition also includes participants of the NDIS
program through the RCH.
Family - the patient, their carers and relatives. The members of the
family are determined by the patient and their carers and sometimes include
close friends. The term 'carer' is used in many health care policy documents.
In the context of the RCH, the word family replaces carer and is defined as people
who provide support to children requiring the services of RCH, be it directly
or indirectly. Family may include parents, siblings, other relatives, guardians
or friends. If the child is capable, family is who the child defines it to be.
Patient and Family Centred Care (P&FCC)- the delivery of health care based on partnerships between
patients, families and all those involved in the care of the child and family.
Community: A group of people who have characteristics in
common. For example, groups with the same health condition or disease, support
groups with a common interest or ideology, groups from a similar ethnic or
cultural background, groups from a specific geographical location or catchment.
The population that RCH serves is made of many diverse communities.
Child, Adolescents, Family and Community
participation: The process of actively involving children, adolescents, families and
communities in their own health care and in health service planning and
priority setting; policy development, implementation and evaluation; resource
allocation and quality improvement initiatives. This involves negotiation
with the child, adolescent, family or community about the level of involvement,
participation and decision-making about their health care and health care
delivery in which they feel comfortable or able to engage.
Diversity: Recognising that each person is a unique and complex being is integral
to understanding and responding effectively to health care needs at an individual,
family or community level. Diversity refers to age, personal and professional
background, education, function and personality. It includes lifestyle,
socio-economic status, sexual preference, ethnicity and status within the
general community. Facilitating access and equity for marginalized groups and
individuals must occur across all areas of healthcare.
This procedure is
divided into four sections:
capacity and ability of patients to participate in their health care will vary
on the basis of factors such as developmental level, disabilities, culture and
personal choice. Families bring a rich and diverse set of knowledge, values,
beliefs, and experiences that contribute to the care of their child/young
person. Patients and families will vary in their requirements for information,
decision making and involvement. Patients and families may levels at which they
wish to participate in their care. RCH professionals will assess these
preferences and activity listen and collaborate with families as to the level
and type of involvement they would like in the patient’s care.
Hospital staff should
use the following guide to improve the experience and outcomes for patients and
Treat patients and families with dignity and respect:
Share information clearly and openly
Involve the patient and family in decision making
Share the provision of care
Involving patients and their families in co-design.
where professional and consumer share power to plan and deliver support
together, recognizing that consumers have vital contributions to make in order
to improve quality of life for patients and their families.
Advisory Committee - consists of representatives
from the wider community and reports directly the RCH Board. This
committee is a legislative requirement. Their role is to:
RCH is committed to having consumer representation on all key governance core committees. We currently have Consumer Representatives Volunteers on most Great Care
Consumers on your committee/group: (ongoing or long term)
consumers in committees provides an opportunity to move beyond ad- hoc consumer
feedback to a more interactive approach and allows consumers to have direct
input into decision-making processes.
should be made to ensure the meeting is at a family friendly time, and that the
contribution of families is supported and encouraged.
to the Consumer
Representatives on Committee procedure.
Patient and Family Centred Care (P&FCC) into daily business
Surveys and Feedback
Reporting safety and risk concerns
Make it easy for
patients and their families to report safety and risk concerns.
How do we do this?
a concern is raised what do you do?