In this section
Royal Children's Hospital (RCH) values child and adolescent, family and
community participation in the planning, delivery, evaluation and quality
improvement of health care services in order to achieve best possible health
outcomes. RCH fosters a culture of participation in its internal
and external communities in accord with Victorian Government commitment in this
area. RCH aims to facilitate the involvement of children and adolescents
in their healthcare according to their maturity, age and any relevant law.
There is evidence that participation in health leads to better outcomes and
better quality of care.
/ Patient - a person receiving healthcare from The Royal
Children's Hospital. Children and adolescents at RCH are current or potential
users of the health care service, either directly or indirectly. It includes
children and adolescents living with a disability, those from diverse cultural
and religious backgrounds, and with varying social circumstances, sexual
orientations, health and illness conditions. This definition also includes
participants of the NDIS program.
- the patient, their carers and relatives. The members of the family are
determined by the patient and their carers and sometimes include close friends.
The term 'carer' is used in many health care policy documents. In the context
of RCH, the word family replaces carer and is defined as people who provide
support to children requiring the services of RCH, be it directly or
indirectly. Family may include parents, siblings, other relatives, guardians or
friends. If the child is capable, family is who the child defines it to
and Family Centered Care (P&FCC)- the delivery of
health care based on partnerships between patients, families and all those
involved in the care of the child and family.
A group of people who have characteristics in common. For example, groups with
the same health condition or disease, support groups with a common interest or
ideology, groups from a similar ethnic or cultural background, groups from a
specific geographical location or catchment. The population that RCH serves is
made of many diverse communities.
Adolescents, Family and Community participation:
The process of actively involving children, adolescents, families and
communities in their own health care and in health service planning and
priority setting; policy development, implementation and evaluation; resource
allocation and quality improvement initiatives.
This is a broad concept that includes all Australians. Recognising that each
person is a unique and complex being is integral to understanding and
responding effectively to health care needs at an individual, family or
community level. Diversity refers to age, personal and professional background,
education, function and personality. It includes lifestyle, socio-economic
status, sexual preference, ethnicity and status within the general community.
Facilitating access for these often marginalized groups and individuals must
occur across all areas of healthcare.
procedure is divided into four sections:
capacity and ability of patients to participate in their health care will vary
on the basis of factors such as developmental level, disabilities, culture and
personal choice. Families bring a rich and diverse set of knowledge, values,
beliefs, and experiences that contribute to the care of their child/young
person. Patients and families will vary in their requirements for information,
decision making and involvement. Patients may or may not wish to participate.
RCH will explore this choice and respect their wishes.
has shown that patient and family centered care can produce benefits such as:
decreased patient anxiety levels, faster recovery and reduced medication
staff should use the following guide to improve the experience and outcomes for
patients and their families:
for improvement projects.
These can take a number of formats:
Surveys, interviews, focus groups, complaints,
feedback forms are common ways to seek information. Some other techniques
to consider are:
Make it easy for patients and their families to
report safety and risk concerns.
and family centred care is about developing an equal partnership with patients
and their families at all levels. This is part of our everyday
business. This includes the involvement of patients and their families in
decision making about service delivery, care plans, program development and
of the ways to achieve this is via consumer representation on RCH Committees;
the RCH already has consumer representatives on a number of key
Advisory Committee - consists of representatives
from the wider community and reports directly the RCH Board. This
committee is a legislative requirement. Their role is to:
RCH is committed to having consumer representation on all key governance core committees.
We currently have Consumer Representatives Volunteers on most Great Care
Consumers on your committee/group: (ongoing or long term)
consumers in committees provides an opportunity to move beyond ad- hoc consumer
feedback to a more interactive approach and allows consumers to have direct
input into decision-making processes.
should be made to ensure the meeting is at a family friendly time, and that the
contribution of families is supported and encouraged.