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Despite its many challenges, oncofertility continues to rapidly advance. In 2012 in response to calls from cancer survivors and their families, a multidisciplinary taskforce involving major Victorian Comprehensive Cancer Centre (VCCC) partners was established across the paediatric and adult sectors to address the unmet needs around fertility. Respectful exchange has enabled the introduction of new ethical and integrated models of care. It is in this spirit that we welcome families, clinicians, scientists and policymakers to the second National Oncofertility Summit at The Royal Children’s Hospital. We hope to explore potential solutions for the most challenging issues in oncofertility care and survivorship. We thank our partners for contributing to the success of this event: The University of Melbourne, The Royal Women’s Hospital, The Youth Cancer Action Board Peter MacCallum Cancer Centre and Fertility Preservation Taskforce Consumer Advisory group.
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For those who are unable to attend the Summit in person, you are welcome to register for online attendance.
During registration, please indicate if you are interested in contributing to a national paediatric oncofertility coalition that will develop and implement the national standards of care.
Full refund can be given up to 7 days before the event. For refund requested less than 7 days before the event, please contact the event organizer to find out if a full or partial refund is possible.
View the full program of the Second National Oncofertility Summit 2019
Scholarships are available to support nurses and allied health staff to attend the Summit at a reduced rate ($110 instead of $165)
Full sponsorships are available for students and young consumers.
For staff and students who wish to apply for a scholarship/sponsorship, please submit a statement (no more than 100 words) on the reasons why you want to attend the Summit, how the Summit will benefit you and what you wish to learn from the Summit to the Chair of the Organizing
firstname.lastname@example.org). You will then be contacted with a code for registration at a reduced rate.
For young consumers who wish to receive a full sponsorship to attend the Summit, please contact the Chair of the Organizing Committee
email@example.com) for registration instructions.
Department of reproductive medecine and gynecological endocrinology, ( RME)
Department of Sexual Medicine, University Hospital Basel, Switzerland
Astrid Ahler is a reproductive endocrinologist and sexual health specialist, running the fertility preservation programm at the University Hospital of Basel. As a board member of the swiss fertility preservation program (Fertisave) she contributed to national guidelines, and the international bone marrow transplant group guidelines on fertiliy preservation in children. She is part of the interdisciplinary sexual health clinic in Basel, a reviewer of the Journal of Sexual Medicine and runs workshops for the European Society of Sexual Medicine (ESSM). Being part of the cancer survivor follow up clinic, she is specially engaged in the sexual and reproductive health counselling. She started and has been involved in the ASK Project for adolescents and young adult cancer patients since 2018, which consists of a combination of gyneacological follow up and plattform for discussing questions about sexuality, body image and fertility for males and females during and post cancer treatment.
Paediatric and Adolescent oncologist, Sydney, Lead of Australasian Oncofertility Consortium, Australia
Dr Anazodo trained in Paediatric and Adolescent Oncology in the United Kingdom and completed her training with a fellowship in Adolescent Cancer in Sydney and postgraduate diploma in Adolescent Oncology. Dr Anazodo was appointed as the Director of Adolescent and Young Adult (AYA) Cancer at Sydney Children’s and Prince of Wales Hospital in October 2010 and has subsequently developed a comprehensive Youth Cancer Service across five sites in NSW and ACT.
Dr Anazodo leads the Future Fertility research program on reproductive concerns of cancer patients and she has been instrumental in the development of Medicare item numbers for public funding for oncofertility care in Australia as well as leading international work on oncofertility models of care and global oncofertility competencies. Dr Anazodo is the chair of the Clinical Oncology Society of Australia fertility preservation group and guidelines group as well as being a member of the International Paediatric Oncofertility International (PIN) group.
Dr Anazodo has received a number of awards for her work in reproductive care including a Champions Award from Prince of Wales Hospital, Pride of Australia award in 2015, Churchill Fellowship in 2015, nomination for Women of the Year in February 2016, NSW Health Award 2018 for Improving Care, Premiers Award 2018 for Implementation of Care and the NSW Cancer Institute Rising Star PhD award.
Elsie Inglis Professor of Clinical Reproductive Science, University of Edinburgh
Consultant in Reproductive Medicine, Royal Infirmary of Edinburgh
Head of Section, Obstetrics and Gynaecology, University of Edinburgh
Trained in Obstetrics and Gynaecology in Edinburgh, with a WHO Research Fellow post then Subspecialty training in Reproductive Medicine. After a year in UC San Diego he returned to the MRC Human Reproductive Sciences Unit in 1998 with a Consultant post in Reproductive Endocrinology and Infertility at the Royal Infirmary of Edinburgh. Subsequently appointed to Chair of Clinical Reproductive Science at the University in 2005: over subsequent years established a group investigating female reproductive lifespan, with laboratory and clinical aspects particularly related to the adverse effects of cancer treatment on fertility. He has also conducted clinical studies developing our understanding of the novel neuropeptides kisspeptin and neurokinin B in human reproductive function in men and women. He is past Coordinator of the ESHRE Special Interest Group in Fertility Preservation, and a member of the HFEA Scientific and Clinical Advances Advisory Committee and the ESHRE Executive Committee.
Thorne Harbour Health
Amelia works as a trainer, facilitator, researcher and consultant in areas involving mental health, fertility and LGBTIQA+ topics.
Previously Amelia has worked with the Fertility Preservation Taskforce (a collaboration between The University of Melbourne, the Royal Children’s Hospital and the Royal Women’s Hospital), and with Melbourne IVF and Queensland Fertility Group. Within fertility spaces, her specialist areas of knowledge include pathways to donor gamete use (sperm and eggs) and psychosocial implications of sperm donation and non-genetic parenting. As a proud queer woman, Amelia also assists folks belonging to gender and sexual minority groups when navigating mainstream fertility spaces.
Amelia is the project lead for the LGBTI+ Suicide Prevention project at Thorne Harbour Health. Here she is developing and will be delivering LGBTI+ Affirmative Practice training to mainstream mental health first responders and primary healthcare workers in an effort to improve mental health crisis experiences of LGBTIQA+ community members accessing these services. Amelia also provides consultation for LivingWorks in the development of their specialised LGBTIQ+ suicide prevention training modules.
Leslie Coker Appiah, MD
Chief, General Obstetrics and Gynecology
Department of Obstetrics and Gynecology
University of Colorado School of Medicine
Pediatric and Adolescent Gynecology
Children's Hospital Colorado
Director, Fertility Preservation and Reproductive Late Effects Program
Colorado Cancer Center
Children's Hospital Colorado Center for Cancer and Blood Disorders
Dr. Leslie Appiah is an Associate Professor of Obstetrics and Gynecology at The University of Colorado School of Medicine and pediatric and adolescent gynecology at the Children’s Hospital Colorado. She serves as Chief of General Obstetrics and Gynecology in the Department of Obstetrics and Gynecology and Director of the Fertility Preservation and Reproductive Late Effects program at the Colorado Cancer Center and Children’s Hospital Colorado Center for Cancer and Blood Disorders. Dr. Appiah attended medical school at the University of Texas Southwestern Medical School and completed residency at Sinai Medical Center in Baltimore, MD. She subsequently completed a research fellowship in reproductive genetics and clinical fellowship in pediatric and adolescent gynaecology at Texas Children’s Hospital, Baylor College of Medicine. Dr. Appiah has expertise in oncofertility, is well-published and speaks extensively across the nation. She is co-founder of the Pediatric Initiative Network of the Oncofertility Consortium where she served as chair for 5 years and is currently co-chair of the Adolescent and Young Adult (AYA) Reproductive Late Effects Committee of the Oncofertility Consortium. Dr. Appiah’s clinical and research interests include fertility preservation in pediatric, adolescent and young adult (AYA) cancer, reproductive late effects in cancer survivorship and hormone replacement therapy in the medically complex patient.
Associate Professor McCarthy is a Senior Research Fellow with the Murdoch Children's Research Institute (MCRI) and the Coordinator of the clinical Psycho-oncology Program at the Children’s Cancer Centre at The Royal Children’s Hospital, a multidisciplinary team providing psychological support to children with cancer and their families. Dr McCarthy’s research interests include genomics and personalised medicine, bioethics, fertility preservation, e-mental health, family impacts of childhood cancer, psychosocial screening, and adolescent and young adult cancer, A/Prof McCarthy serves as the Chair of the Psycho-oncology Committee of the Australian and New Zealand Haematology and Oncology Group (ANZCHOG) and also serves as an invited member of the Psycho-oncology Committee for the International Society of Pediatric Oncology..
Academic Director, Children’s Bioethics Centre, The RCH
Professor in Health Ethics, The University of Melbourne
Professor Lynn Gillam is an experienced clinical ethicist, originally trained in philosophy (MA, 1988, Oxon) and bioethics (PhD, Monash, 2000). Lynn is the Academic Director of the Children’s Bioethics Centre at The Royal Children’s Hospital Melbourne (RCH). She is also Professor in Health Ethics at the University of Melbourne, in the Melbourne School of Population and Global Health. Lynn works in clinical ethics case consultation at the RCH, and has been involved in over 200 ethics consultations over the past 12 years. At the RCH she also provides policy advice and leads research into a range of issues in paediatric clinical ethics - including end of life decision-making, management of disorders of sex development, information-giving to children, and parental refusal of treatment.
Reproductive Services /Melbourne IVF, The Royal Women’s Hospital.
Honorary department of O&G, Melbourne University.
Dr Debra Gook is Senior Research Fellow and Head of Cryopreservation Services at Reproductive Services, Royal Women’s Hospital and Melbourne IVF, and holds an honorary position in the Department of Obstetrics and Gynaecology, University of Melbourne, Australia. For over three decades she has been at the forefront of research into the cryopreservation of the human female gamete. She has presented and published widely on cryopreservation of both human mature oocytes and human ovarian tissue and continues to play a key role in the development of this technology for clinical application. She was instrumental in the establishment of the world’s first egg bank at the Royal Women’s Hospital and a pioneer in the field now referred to as “fertility preservation” or “oncofertility”. Her research continues to focus on fertility preservation, with a special interest in follicle development and in vitro maturation. She is the secretary of the International Society for Fertility Preservation and a board member of the Asian Society for Fertility Preservation.
Professor of Obstetrics and Gynaecology, University of Melbourne
Martha Hickey is Professor of Obstetrics and Gynaecology and Co-Director of the Gynaecology Research Centre at the University of Melbourne and the Royal Women’s Hospital, Victoria, Australia. She is also an NHMRC Practitioner Fellow. In her clinical practice she runs the largest public menopause service in Australia and in 2002 established the first multidisciplinary service for managing menopausal symptoms after cancer (MSAC). This service has now been replicated across Australia. She is a Senior Editor for the Cochrane Collaboration Gynaecology and Infertility Group and leads the international COMMA (Core Outcomes in Menopause) initiative.
Monash Biomedicine Discovery Institute, Department of Anatomy and Developmental Biology. Monash University
Dr Karla Hutt is the Biomedicine Discovery Institute Outstanding Woman in Science Fellow at Monash University. She obtained her PhD from the Australian National University in 2006, where her studies focussed on the establishment and maintenance of the primordial follicle pool. She then undertook her postdoctoral studies at the University of Kansas Medical Center (USA), where she investigated the impact of environmental toxicants on oocyte and embryo quality. In 2008 she returned to Australia to join Prince Henry’s Institute. She subsequently moved to Monash University where she now leads the Ovarian Biology Laboratory. Her lab investigates the role of DNA repair and apoptosis in determining oocyte number and quality, with the aim of i) improving women’s health and fertility during aging and ii) understanding how cancer treatments damage the ovary.
Chair 2nd National Oncofertility Summit, Senior Lecturer at the University of MelbourneThe Women’s HospitalPaediatric & Adolescent Gynaecologist at the Royal Children’s Hospital (RCH).
Yasmin is Clinical Lead of the Fertility Preservation Service RCH, having worked at the RCH and The Women’s since 2002. Prior to this she worked in far north Queensland and the Cape. Her work focusses on timely intervention in childhood to maximise reproductive health and wellbeing. She spent two years in the US translating guidance on breast disorders in children with her supervisor Prof P Simmons Mayo Clinic. Her work in cervical cancers in young women called for HPV vaccination in forensic protocols, implemented by the CDC. In 2012 she became co-chair of the Fertility Preservation Taskforce a collaboration of clinician-scientists and consumers across the paediatric and adult sectors. They established the first governed model of oncofertility care for children, which is supported by The RCH Foundation. She contributes to fertility guidance for RANZCOG, COSA and the Best Practices and Research committees of the Global Oncofertility consortium, and was an invited international reviewer for the PanCareLIFE Female Fertility Preservation Guidelines. She hopes to establish national benchmarks of oncofertility care through a National Pediatric Oncofertility Coalition of partners. Yasmin has received an NHMRC Translation of Research into Clinical Practice Fellowship and the Melbourne Medical School Strategic Grant for Outstanding Women supported by both the University and The Women’s Hospital.
Paediatric Haematologist Oncologist at the Children's Cancer Centre, The Royal Children's Hospital.Dr Lisa Orme has been a consultant Paediatric Haematologist Oncologist in the Children's Cancer Centre at the Royal Children's Hospital Melbourne since 2003. She was appointed as an adolescent and young adult oncologist to both ONTrac at PeterMac and the now VCCC Sarcoma Service in November 2007. Dr Orme served as Medical Director of the ONTrac at Peter Mac 2011-2016. She has long had a keen interest and commitment to optimising oncofertility care and has been a member of the RCH Fertility Preservation Taskforce since its inception.
Dr Orme completed her medical degree at the University of Melbourne and paediatric training at the Royal Children's Hospital. She completed a Fellowship in Paediatric Haematology/Oncology at Memorial Sloan-Kettering Cancer Centre. Dr Orme's joint appointment across the paediatric and adult oncology services continues to provide exciting opportunities for collaborative clinical research and streamlined approaches to care for young people with cancer. Her interests and involvement include: sarcomas in young people, the development of collaborative models of care for AYA oncology patients and families, oncofertility care, clinical trial access in AYAs, survivorship and late effects..
Department of Adolescent Medicine, Royal Children’s Hospital, Parkville, VIC, Australia.
Murdoch Children’s Research Institute, Parkville, VIC, Australia.
Department of Paediatrics, University of Melbourne, Parkville, VIC, Australia.
Department of Psychiatry, University of Melbourne, Parkville, VIC, Australia.
The Walter and Eliza Hall Institute of Medical Research, Parkville, Australia.
Ken Pang is a consultant paediatrician and biomedical researcher. Clinically, he trained in paediatrics and child psychiatry, and currently works with young trans and gender diverse individuals at the Royal Children’s Hospital in Melbourne. As a researcher, Ken completed his PhD in genomics and immunology, before undertaking postdoctoral studies in genetics at Harvard University on a Fulbright Scholarship and as the NHMRC CJ Martin/RG Menzies Fellow. In 2016, Ken joined the Murdoch Children's Research Institute (MCRI), where ¬– as one of the Melbourne Children’s Clinician Scientist Fellows – he now leads the gender research program whose aim is to improve understanding and treatment of gender dysphoria in children and adolescents. Ken has published >50 papers/book chapters including in leading basic science journals such as Science, Immunity, Genome Research, as well as clinically oriented journals such as Molecular Psychiatry and Pediatrics, and in total his work has been cited more than 10,000 times.
Department of Obstetrics & Gynaecology, Royal Women's Hospital, University of Melbourne, Parkville, VIC, Australia 3052
Dr Michelle Peate is the Program Leader for the Psychosocial Health and Wellbeing Research (emPoWeR) Unit based at the Department of Obstetrics and Gynaecology, University of Melbourne. In her current role she is overseeing several psycho-oncology research projects. She was a 2011 NSW Young Tall Poppy and the 2017 International Psycho-Oncology Society New Investigator Award winner. Her main goal is to develop patient resources and evaluate them in prospective, multi-centre studies. These include fertility decision aids for people with cancer and those with low health literacy, tools to support cancer survivorship, and exploring unmet needs of advanced cancer patients.
Prof Lillian Meacham is a pediatric endocrinologist who has worked in the field of late effects of cancer therapy for over twenty-five years. Her career in this field began as the endocrinologist in a multidisciplinary neuro-oncology clinic and she now serves as the medical director of the multi-disciplinary pediatric cancer survivor program that has seen more than 1500 survivors. Her work in this area expanded in 2014, when she helped create a centralized Fertility Preservation Consult Team for the Aflac Cancer and Blood Disorders Center. Her interest in survivorship led her to serve as the site PI on the multi-institutional NCI funded Childhood Cancer Survivor Study (CCSS) for the last 15 years. She has been a senior co-chair for 4 of the Children’s Oncology Group (COG) Taskforces that develop the Long-Term Follow-Up Guidelines for Pediatric Adolescent and Young Adult Cancers. She also serves on 5 working groups for the International Guidelines Harmonization Group which works to harmonize recommendations globally for long term surveillance for late effects of cancer treatment..
Head of Endocrine and Metabolic Service, The Royal Women’s Hospital
Acting Head, Reproductive Services, The Royal Women’s Hospital
Clinical Director and Head of Clinical Research, Melbourne IVF.
Associate professor, Department of Obstetrics and Gynaecology, The University of Melbourne, Australia
Kate is a fertility specialist, gynaecologist and reproductive endocrinologist. She has a special interest in medical fertility preservation and she established and coordinates the Fertility Preservation Services at the Royal Women’s Hospital and Melbourne IVF. Kate currently co-chairs the COSA Medical Fertility Preservation Guidance development group and is also a member of the international Pancare working group for the European FPS Guidelines.
Paediatric Oncologist/Neuro-Oncologist, Royal Children’s Hospital, Melbourne
Professor of Paediatrics, Department of Paediatrics, University of Melbourne
Professor of Paediatrics, Department of Paediatrics, University of Otago, Christchurch
Continental President (Oceania) International Society of Paediatric Oncology
Board of Directors, International Society of Paediatric Oncology
Co-Chair Adapted Treatment Working Group, SIOP Paediatric Oncology In Developing Countries
SIOP Lead for WHO Global Initiative for Childhood Cancer
Professor Michael Sullivan a Paediatric Oncologist/Neuro-Oncologist in the Children’s Cancer Centre, Royal Children’s Hospital, and Professor of Paediatrics, Department of Paediatrics, University of Melbourne. A graduate of the University of Otago Medical School he trained in Paediatric and Paediatric Oncology in New Zealand and Australia. His PhD is in Cancer Epigenetics. He was formerly Chair of the New Zealand National Children’s Cancer Network where he led the establishment of the New Zealand Late Effects Assessment Program and the New Zealand Children’s Cancer Registry. He is the Continental President (Oceania) for the International Society of Paediatric Oncology (SIOP) and a member of the SIOP Board of Directors. Professor Sullivan has a long-term commitment to Paediatric Oncology in Developing Countries (PODC) especially in Oceania where for the last 10 years has supported the development of child cancer care in Fiji, PNG, Timor-Leste, Laos and Nepal. He is a member of the SIOP PODC working group, the SIOP Advocacy Working Group and co-chairs the SIOP PODC Adapted Treatment Working Group. Professor Sullivan represented SIOP at the 2018 WHO Child Cancer Workshop in 2018 that led to the development of the WHO Global Initiative for Childhood Cancer. He is the SIOP lead for this Global WHO supported initiative, which aims to improve the care, survival and long-term outcome for children with cancer in Low and Middle Income Countries.
Centre for Reproductive Health, Hudson Institute of Medical Research
Dr Patrick Western’s research is focused on understanding the epigenetic processes underlying establishment of the germ cell lineage and the impact of transmitted epigenetic information on the next generation.
Dr Western completed his doctoral studies on temperature dependent sex determination in the American alligator. He then joined Professor Azim Surani’s laboratory at the Wellcome Trust Gurdon Institute, Cambridge University, where he studied epigenetic reprogramming and the reacquisition of pluripotency in differentiated somatic cells, embryonic stem cells and germ cells. Dr Western returned to Australia to join the ARC Centre of Excellence in Biotechnology and Development where he pursued an interest in sex-specific germ cell development with a focus on the regulation of pluripotency and differentiation in early germ cells.
Dr. Western leads the Germ Cell Development and Epigenetics Group within the Centre for Reproductive Health at the Hudson Institute of Medical Research. Using genetic and pharmacological models, the Germ Cell Development and Epigenetics Group studies mechanisms regulating epigenetic programming in the germline and the impacts of germline epigenetic information on offspring development. Our work combines discovery science with translational research aimed at developing clinically relevant information required for understanding the impacts of epigenetic programming on disease inheritance, and the potential interactions between epigenomic drugs and the germline epigenome, and subsequent outcomes in offspring.
Department of Gynaecology & Andrology Cliniques Universitaires Saint-Luc Université Catholique de Louvain Brussels- Belgium
Christine Wyns is the current Head of Department of Gynecology and Andrology and Director of the Reproductive Tissue and Cell Bank at Cliniques Universitaires Saint Luc, Brussels, Belgium. She is also a Professor at the Catholic University of Louvain. Christine obtained a degree in the Doctor in Medicine from the Catholic University of Louvain, Brussels in 1993. She held a degree in Gynecology from the Catholic University of Louvain, Applied Andrology from the University of Limoges, and Health and Biomedical Sciences from the Catholic University of Louvain. Her PhD Thesis was on ‘Male fertility preservation after gonadotoxic treatment’. She is currently the Vice-President of the National College of Physicians in Reproductive Medicine, and Chair of the European IVF monitoring (EIM) steering committee. She has published more than 85 articles in medical journals and medical books, and communicates regularly at major international conferences and symposia. She has a keen interest in promoting theses and dissertations in fundamental and clinical research.
Professor Margaret Zacharin is a paediatric and adult endocrinologist with appointments at The Royal Children's Hospital, Melbourne and at the Peter MacCallum cancer hospital. She is a fellow of the Royal Australasian College of Physicians and an examiner for the College. Honours include Order of Australia medal (OAM) for services to paediatric enfdocrinologgy, Outstanding international clinician award, European society for Paediatric Endocrinology 2017, Robert Vines medal, Australasian paediatric endocrine group (APEG) for Clinical Excellence in paediatric endocrinology 2016.
Her research interests include disorders of growth and puberty, osteoporosis and related conditions in primary bone disorders and in chronic disease, hypogonadism, hormone replacement treatment and long term effects of cancer treatment.
Current projects, with research grants of over $2,000,000, include trials of bisphosphonate use in several primary and secondary bone disorders of children, including Duchenne muscular dystrophy and Perthe’s disease, establishment of hormonal reference ranges in preterm infants and a study of bone marrow transplant survivors. A major interest is in endocrine education and provision of essential medicines for non-communicable disease in developing countries and limited resource settings.
She has over 150 publications in peer-reviewed journals. She has written a book of paediatric endocrinology in a limited resource setting, available in English and to be published in Spanish, together with a number of family information booklets on paediatric endocrinology, bone health, hormone replacement in children with disabilities and long term effects of paediatric cancer. These have recently been translated to multiple Asian and European languages.