In this section
Palliative care for children and young people with
life-limiting conditions is an active and holistic approach to care, embracing
physical, emotional, social and spiritual elements.
condition” is one for which, sadly, there is no cure or treatment that can keep
the person alive.
of palliative care is to provide comfort and a good quality of life, for
however long it lasts, for both the child and their family.
Many people will be part of discussions regarding palliative care but parents
and the treating clinical team will always be included. With your permission,
or at your suggestion, other relevant people may be invited to these meetings
including extended family, social workers and pastoral care, bedside nursing
staff and other specialists that have been involved in your baby’s treatment
and care. Each person will be there
to respectfully support you through this process.
many cases palliative care will be provided on Butterfly Ward. Where possible,
you will be offered a private space where you may stay overnight with your
Other options that may be considered include moving to a hospital or
specialised community centre closer to home, or even your home itself with the
support of a dedicated palliative care team.