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When the time is right for you and your baby, you will move on from Butterfly. Most babies who leave the ward go home, either directly or via Care by Parent (see “Where to stay” in "My room" section of Butterfly tab in the My RCH app for more information). About a third of babies move on to other wards within RCH or go back to their referring hospital or a hospital closer to home. Sadly, a small number of babies each year do not survive to leave with their parents. These patients usually receive Palliative (comfort) Care before they pass. There is a separate section on this if you would like to read it.The brief section on “Going home” in the “My ward” section of the app explained how important it is to start planning for discharge almost as soon as you arrive! This is to avoid needlessly prolonging your baby’s stay in hospital and all the potential difficulties doing so might cause for you and your family.
One of the most important reasons for creating the COCOON model of care was to prepare families for the time when they will leave Butterfly. COCOON aims to engage families as early as possible in their baby’s care and teach them the skills that they will need to feel confident and competent to look after their babies. If you work through the COCOON educational resources via the app or website with your baby’s bedside nurses, care coordinators and doctors during your baby's stay, we hope that you will feel well prepared for your baby’s discharge. The earlier you start the process after admission, the earlier you will feel comfortable taking care of your baby’s day-to-day needs.
In the lead up to going home, many parents ask us to advise them on what “baby stuff” they need before they can take their baby home. Here is a list of practical items:
There are many other items that are marketed to parents as “must haves” but a basic list, as above, can initially be limited to the themes of sleeping, eating, travelling, dressing, nappy changing, bathing, and playing. Once you get home you can figure out if you really need the other “must haves” or not.Before you go, the ward clerk, your baby’s care coordinator, or another staff member will provide you with the following, as required:
Before you go home, you may want to watch the resuscitation videos we have made to teach parents some Basic Life Support techniques. We hope that you will never need to resuscitate your baby at home but you may feel more comfortable knowing how to do it just in case it is ever required. Please feel free to ask any member of your baby's clinical team if you have any questions about the videos.
Follow this link to view our family resuscitation training videos.