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This is an admirable sentiment, but is it any more than that? As an overall ethos it is hard to disagree with, but it is not always clear what it means in practice. Families are complicated at the best of times.
Sometimes they can start to fray around the seams when a child is sick. Should we always be guided by the expressed needs and preferences of families, or the child? And what if they are different?
This conference will explore whether the idea of patient and family-centred care provides meaningful guidance in ethically complex and challenging health care situations.
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Director of Bioethics, The Hospital for Sick ChildrenDepartment of Paediatrics, Joint Centre for Bioethics, The University of Toronto
Patient and family-centred care: is paediatric health care losing sight of the patient?