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2009 National Paediatric Bioethics Conference

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    The first annual National Paediatric Bioethics Conference was held on 23 - 24 November 2009, in the Ella Latham Theatre, at the Royal Children's Hospital, Melbourne. We have made available audio recordings of the presentations and video recordings of the hypotheticals for both days.  bioethics_conference2.jpg

    Public Forum (Monday 23rd November)

    The Children's Bioethics Centre hosted it's first public forum titled: "Children's access to information and decision making in the health context", on Monday 23rd November 2009 at the Royal Children's Hospital, Melbourne, to celebrate the 20th anniversary of the UN Convention on the Rights of the Child.  The Hon Michael Kirby was the guest speaker for the evening, along with a panel of professionals from diverse backgrounds to participate in an ethical hypothetical discussion facilitated by A/Prof Lynn Gillam (Academic Director and Clinical Ethicist Children's Bioethics Centre).

    PresentationsAudioVideo 

    The UN Declaration of the Convention on the Rights of the Child
    Mark Gillam (aged 15), Georgie Hynson (aged 11), Catriona Gillam (aged 9)

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    (MP3, Duration: 4:37 min/sec, KB)

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    Keynote addess: Children and young people's access to information about their medical condition and their role in decision making about their medical care
    The Hon Michael Kirby (Retired High Court Judge)
    Chair: Hon Joseph Kay (Children's Bioethics Centre Development Board)

    Download
    (MP3, Duration: 37:31 min/sec, KB)

    NA

    Hypothetical discussion
    Facilitator: A/Prof Lynn Gillam
    Chair: Prof Paul Monage (University of Melbourne)
    Panel Members:
    Hon Michael Kirby (Retired High Court Judge)
    Beth Wilson (Health Services Commissioner)
    Dr Hugo Gold (Children's Bioethics Centre)
    Susan Biggar (Chair, RCH Family Advisory Council)
    A/Prof Trevor Duke (RCH Clinical Ethics Case Response Group)
    Fiona Newall (RCH Clinical Ethics Case Response Group)
    Moira Rainer (Consumer Advocate)

     

    Download
    (MP3, Duration: 2:24:37 hr/min/sec, KB)

     

    Download

    Conference (Tuesday 24th November)

    The Children's Bioethics Centre hosted the Paediatric Ethics in Practice Conference on Tuesday 24th November 2009 at the Royal Children's Hospital, Melbourne.  Prof Neil Schechter, Director Pain Relief Program, Connecticut Children's Medical Centre was the international key note speaker.  Other speakers included Joseph Santamaria (The Victorian Bar) and Chief Justice Alastair Nicholson (Family Court of Australia).  A/Prof Lynn Gillam (Academic Director and Clinical Ethicist Children's Bioethics Centre) facilitated an ethical hypothetical discussion with the audience regarding children's rights to information in the health care context.

    PresentationsAudioVideo
    Introducing the UN Declaration on the Convention on the Rights of the Child
    Mr Joseph Santamaria (The Victorian Bar)

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    (MP3, Duration: 26:17 min/sec, KB)

    NA

    Keynote Address: Ethics of Paediatric Pain Relief
    Prof Neil L. Schechter (Director Pain Relief Program, Connecticut Children's Medical Center)

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    (MP3, Duration: 53:30 min/sec, KB)

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    Promoting 'best interests': minimising suffering for children
    Chair: Prof Terry Nolan (University of Melbourne)

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    (MP3, Duration: , KB)

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    'Institutional barriers' to pain management
    Dr Jane Munro (RCH)

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    (MP3, Duration: 34:35 min/sec, KB)

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    The choices we make: ethical challenges in paediatric palliative care
    Dr Jenny Hynson (RCH)

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    (MP3, Duration: 20:56 min/sec, KB)

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    Hypothetical Case Discussion
    A/Prof Lynn Gillam (RCH)

    Download
    (MP3, Duration: , KB) 

    Download
    (MP3, Duration: , KB)

    Children's rights, parents' rights?
    A/Prof Lynn Gillam (RCH)

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    (MP3, Duration: , KB)

    NA

    The role of the courts in upholding children's rights
    Chief Justice Alastair Nicholson (Family Court of Australia)

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    (MP3, Duration: 43:08 min/sec, KB)

    NA

    Adolescents and their right to confidentiality
    Prof Susan Sawyer (RCH)

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    (MP3, Duration: 27:39 min/sec, KB)

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    The rights of children not able to speak for themselves
    Prof Dinah Reddihough (RCH) 

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    (MP3, Duration: 19:30 min/sec, KB)

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    Rights of an infant with Disorders of Sexual Development
    Prof Garry Warne (RCH)

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    (MP3, Duration: 25:25 min/sec, KB)

    NA

    Hypothetical Case Discussion
    Chair: Prof Terry Dwyer (MCRI)
    Facilitator: A/Prof Lynn Gillam (RCH)

    Download
    (MP3, Duration: , KB)

    Download
    (MP3, Duration: , KB)