Recommended reading
Clayton JM, Hancock KM, Butow PN, Tattersall MHN and Currow DC 2007, ‘Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers’, Medical Journal of
Australia, vol. 186, no. 12, p. S77.
Feudtner C 2009, ‘The breadth of hopes’, New England Journal of Medicine, vol. 361, pp. 2306–07.
Authors
Associate Professor Jenny Hynson, Medical Director, Victorian Paediatric Palliative Care Program, Royal Children’s Hospital Melbourne
Dr Bronwyn Sacks, Fellow, Victorian Paediatric Palliative Care Program, Royal Children’s Hospital Melbourne
Dr Molly Williams, Fellow, Victorian Paediatric Palliative Care Program, Royal Children’s Hospital Melbourne
Acknowledgements
This document was written as part of a project funded by the Department of Health and Human Services Victoria.
Special thanks to the following people who reviewed the document. Ms Liat Watson, parent
Ms Jess Holmes, parent Mr Simon Waring, parent
Prof. Lynn Gillam, Academic Director, Children’s Bioethics Centre, The Royal Children’s Hospital Melbourne
Ass. Prof. John Massie, Respiratory Physician, The Royal Children’s Hospital Melbourne
Ass. Prof. Jill Sewell, Medical Director, Children’s Bioethics Centre, The Royal Children’s Hospital Melbourne
Dr Barbara Hayes, Palliative Care Physician, Clinical Lead - Advance Care Planning Program, Northern Health
Ass. Prof. Andrew Kornberg, Department Head, Neurology, The Royal Children’s Hospital Melbourne
Prof. Katrina Williams, Department Head, Developmental Medicine, The Royal Children’s Hospital Melbourne
Ms Leah Rotin, Social Worker, Victorian Paediatric Palliative Care Program
Ms Sonya Camilleri, Clinical Nurse Consultant, Victorian Paediatric Palliative Care Program
Dr Ros McDougall, Academic, School of Population and Global Health, The University of Melbourne
Ass. Prof. Clare Delaney, Clinical Bioethicist, Children’s Bioethics Centre, The Royal Children’s Hospital Melbourne
Dr Jane Sullivan, Social Worker, Melbourne City Mission Palliative Care
Clinton Griffiths, Nurse Unit Manager, Paediatric and Adolescent Unit, Ballarat Health Services
Prof. Paul Monagle, Stevenson Professor and Head, Department of Paediatrics, The University of Melbourne