About us - Diabetes at the RCH

  • Welcome to the diabetes website of the Royal Children's Hospital, Melbourne. This site is an internet resource provided by the Department of Endocrinology and Diabetes. 

    Being diagnosed with diabetes is something that can affect the whole family and there are many uncertainties and fears that can emerge with this. Here at RCH, we have a large team of professionals that are here to help you. We care for infants, children and adolescents with all types of diabetes including

    • Type 1 diabetes
    • Type 2 diabetes
    • Cystic-Fibrosis related diabetes
    • Steroid induced diabetes
    • Rare genetic forms of diabetes

    Our team is dedicated to helping you and your family manage your diabetes effectively so that you can lead a fulfilling and healthy life. For the patients and families of the Royal Children's Hospital,  this website provides guidelines for managing your diabetes at home. The purpose of these resources is to help you be independent with everyday management of diabetes such as dose adjustment, managing sick days and pump management.

    If your child has type 1 diabetes and is unwell please see sick days

    If you need advice on adjusting your child's insulin doses please see dose adjustment

    If you require a school management plan for your child please click here 

    If you would like any further information, please call our diabetes office on 9345 6661 between 8.00am and 4.30pm, Monday-Friday.

    Newly diagnosed type 1 diabetes

    All young people with type 1 diabetes require injected insulin. Having type 1 diabetes means you or your child cannot make enough insulin. Insulin doses are determined by blood glucose testing.

    As a patient of the RCH, you will meet with a diabetes dietitian, a diabetes social worker and a diabetes nurse educator who will teach you how to care for you or your child’s diabetes. It is very important that the adults who live and care for your child on a daily basis are available for these education sessions. 

    If you have been admitted outside usual business hours (after 4pm Monday to Friday or the weekend) the diabetes educator will come and see you as soon as possible the next working day. In the meantime the ward nurses will support you with your child’s diabetes care.

    At diagnosis you will have specific diabetes self-care skills to learn:

    • How to give insulin
    • How to do a blood glucose test with a lancing device/finger pricker
    • How to keep a blood glucose record book
    • What to do for a low blood glucose reading (hypoglycaemia)
    • What are ketones? When and why we test of ketones?
    • Diabetes and healthy eating

    Once home you will be in contact with a diabetes nurse educator for BGL reviews and adjustment of insulin. Your calls will reduce in frequency as you gain confidence in day to day diabetes management and you begin to alter the insulin based on the record book yourself. We will support you in this process.

    You may return for further outpatient appointments with the Diabetes Allied Health team in the days/weeks to follow to complete initial education. Your first doctor’s appointment should be booked about 1-2 months after diagnosis; you will also see a diabetes nurse and dietitian. Thereafter an appointment will occur every 3-4 months until your child transitions to an adult diabetes service.

    If you would like any further information, please call our diabetes office on 9345 6661 between 8.00am and 4.30pm Monday-Friday.

    Federal Government Subsidy For Continuous Glucose Monitoring - UPDATED  12/4/17

    On April 1 the Federal Government announced that continuous glucose monitoring (CGM) would be fully subsidised for many children and young adults up to 21 years of age (Press Release). There is specific criteria for the subsidy to apply (Criteria), however we anticipate that many of our patients will be eligible. 

    The RCH has received a lot of interest in CGM from our families. This interest has ranged from families confident in the device they would like to use for their child as well as families who are looking for more information about CGM and the device that would most suit their needs. We currently do not have the resources to put all families onto the device straight away. In order to speed up this process, we have applied for more funding to employ a Credentialed Diabetes Educator to run this program. Getting the funding to employ this nurse may take some time but we hope it will only be a matter of a few weeks. In the interim, we will be using the resources which we have available to start a CGM clinic, however we ask for your continued patience and understanding whilst we work through an extensive list. 

    All families who have registered interest (with or without the forms) have been placed on a CGM start list. We will notify you  regarding the signing of the form and the date of your CGM start. If you are unsure if a CGM is right for your family, please read the information we have provided on our website and discuss with your treating doctor at your next outpatient appointment. If you would like to be added to this list to commence on a CGM, please email diabetes@rch.org.au with the relevant forms completed.

    For further information on whether a CGM is right for you or if you have not yet decided which device you would like to order please refer to the webinar section of this website where you will find webinars regarding CGM from Diabetes Australia. These have been held in recent weeks and are ongoing for the next month. RCH also has an upcoming webinar on the 10th May which you can register for here. Further information on CGM and the different CGM options can be found in the 'Management of T1D' section of this website here 


    Webinars

    CGM Weekly Webinar - Presented by Diabetes Australia

    Wednesday 12th April at 7.30pm

    Want to know whether Continuous Glucose Monitoring (CGM) might be beneficial for your child with type 1 diabetes? Diabetes Australia is running a series of free webinars every week throughout April and May to provide information about the benefits of CGM and the Australian Government’s new subsidy initiative to be delivered through the National Diabetes Services Scheme (NDSS). The Australian Government has just committed to the most significant investment in type 1 technology in over a decade. Over four years, $54 million will be provided to subsidised CGM technology to assist children and young people under 21 years of age who face extra challenges managing their type 1 diabetes. A credentialled diabetes educator, will explain CGM technology available under the NDSS, followed by a presentation by Renza Scibilia, Manager - Type 1 Diabetes and Consumer Voice at Diabetes Australia. Renza will provide detailed answers about the Government's CGM initiative.

    Click here to register

    To view the first webinar in this series from April 6th, click here

    CGM – Continuous Glucose Monitoring. Presented by Professor Fergus Cameron and The Royal Children's Hospital

    Wednesday 10th May at 7.30pm

    In this webinar we will introduce you to the world Continuous Glucose Monitoring.

    • What is CGM? 
    • Will it improve diabetes management? 
    • Is it all that it’s cracked up to be?

    This webinar will be live and there will be the opportunity to ask questions at the end

    Click here to register