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Information about Rheumatological conditions

General resources for patients and families

• Glossary
• Finding the support you need
• Finding the support you need: a guide for adolescents
• How others can help
• Joint injections and sedation
• About joint injections - a guide for adolescents
• Helping your teenager become more independent in their health care
• Becoming more independent in your healthcare: a guide for adolescents
• Breathing and relaxation strategies
• Breathing and relaxation strategies: a guide for adolescents
• Helping your child manage pain during procedures
• Anakinra - how to give injections at home
• Anakinra - how to give injections at home: a guide for adolescents
• Anakinra - training checklist for home administration
• Methotrexate - parent information
• Methotrexate - how to give injections at home
• Subcutaneous Methotrexate - parent information
• Subcutaneous Methotrexate - training checklist for home administration

Resources specific to certain rheumatological conditions

Juvenile Idiopathic Arthritis (JIA)

• Information for Kids with JIA
• Information for Young People with JIA
• Physiotherapy and JIA
• Physiotherapy and JIA: a guide for adolescents
• General information about JIA
• Information for teachers
• Information for sports teachers
• Managing the impact of JIA on your child's life
• Managing the impact of JIA on your family
• Medication overview for JIA
• Treatments commonly used for JIA
• Your pre-schooler with JIA

Systemic Lupus Erythematosus (SLE)

• Information from PRINTO (1)
• The Lupus Foundation of America 

Juvenile Dermatomyositis (JDM)

• Information from PRINTO (1)
• The Myositis Assocation 

Vasculitis

• The John Hopkins Vasculitis Center 

Scleroderma

• Information from PRINTO (1)
• Scleroderma Australia
• The US Juvenile Scleroderma Network, Inc 
• The US Scleroderma Foundation

Resources for Adolesecents

• Finding the support you need: a guide for adolescents
• About joint injections - a guide for adolescents
• Becoming more independent in your healthcare: a guide for adolescents
• Breathing and relaxation strategies: a guide for adolescents
• Anakinra - how to give injections at home: a guide for adolescents
• Information for Young People with JIA
• Physiotherapy and JIA: a guide for adolescents

(1) PRINTO: the Pediatric Rheumatology INternational Trials Organisation