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Diabetes manual

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Resources

The Children's Hospital at Westmead Royal Children's Hospital

A wide variety of resources are available and some are listed here.Ask your educator about any additional information you may require. 

  Organisations

  • Diabetes Australia: Diabetes Australia is represented in all statescontact numbers can be obtained from you diabetes centre or telephone directory services.
    Services available: Diabetes education, literature, videos, support for camping and special events, parent support network, purchase of diabetes supplies, advocacy. DA in some states offers concessional or free membership for those under 18 years of age - contact your state DA office for details on membership, services and benefits for each state.
  • Juvenile Diabetes Research Foundation (JDRF): JDRF is represented in all states - contact numbers can be obtained from your diabetes centre or telephone directory services.
    Services available: Literature, videos, support groups, research funding, advocacy.
  • Your local hospital health information unit and diabetes centre.
  • Medic Alert: Suppliers of medical alert bracelets and system. Contact your state office.

Books and videos

The following is a list of a number of resources- produced in Australia and overseas. Remember that management practices may vary from place to place- so if advice seems to vary- check with your diabetes team.

APEG Handbook on Childhood and Adolescent Diabetes (1997)
Edited by Professor Martin Silink (ISBN 0 6462 8302 2)
A comprehensive handbook aimed at health professionals who look after diabetes in children- but may be of interest to some parents also.

Apron Strings and Oven Mits. A Cookbook for Kids with Diabetes (1997)
Produced by Diabetes Australia- NSW.
A cookbook for kids with diabetes.

Diabetes and Your Teenager (1996)
Bonnie Estridge and Jo Davies
British Diabetes Association (ISBN 0 7225 3180 X)
For parents and teenagers. Relevant and practical.

Diabetes Quiz Books 1 and 2 (1997)
Chris May- Sydney Children's Hospital
A fun- quizbased approach to learning about diabetes.

The Dinosaur Tamer (1995)
Marcia Levine Mazur- Peter Banks and Andrew Keegan
American Diabetes Association (ISBN 0 9454 4858 9) Stories to entertain and ease a child's frustrations about having diabetes.

Even Little Kids Get Diabetes (1991)
Connie White Pimer
Albert Whitman & Co (ISBN 0 8075 2158 2)
Written from a child's viewpoint.

The Expert (2001)
The Children's Medical Television Foundation Inc.
A video produced in Australia- providing valuable tips about how to come to terms with diabetes and incorporate it into your family's lifestyle.

Fat and Fibre Counter (1993)
Rosemary Stanton
Wilkinson Books
A handy guide to the fibre and fat content of food.

Food For Under Fives (1990)
Rosemary Stanton
Allen and Unwin (ISBN 1 8637 3729 4)
How to develop good eating pattern for your child.

The GI Factor. The Glucose Revolution (2000)
Jennie Brand Miller- Kaye FosterPowell- Stephen Colagiuri and Anthony Leeds Hodder Headline Australia (ISBN 0 7336 1239 3)
Explains the glycaemic index and how it is applied to diabetes.

The GI Factor Factor: Pocket Guide for Children with Type 1 Diabetes (2001)
Jennie BrandMiller- Kaye FosterPowell and Heather Gilbertson
Hodder and Stoughton (ISBN 0 7336 1336 5)
More about glycaemic index- especially in children.

Grilled Cheese at 4 O'clock in the Morning (1988)
American Diabetes Association (ISBN 0 9454 4802 3)

A Guide to Life for the Diabetic Teenager (1996)
Becton Dickinson- UK

A Healthy Start for Kids (1996)
Susan Thompson
Simon and Schuster (ISBN 0 7318 0547 X)
Written by an Australian paediatric dietitian. General guide to good healthy eating for kids.

In Control. A Guide for Teens with Diabetes (1995)
Jean Betschart and Susan Thom
Chronimed Publishing

InsulinDependent Diabetes in Children- Adolescents and Adults (1998)
Ragnar Hanas
Piara HB- Uddevalla- Sweden (ISBN 91 630 6261 5)
A very detailed book written by a Swedish paediatrician. Covers similar information to this manual- but goes into much greater detail in some areas for those who want to expand their knowledge even further.

Is it You- Them or Diabetes !?!! (1997)
Diabetes Australia- NSW
A series of booklets describing what to expect from your child with diabetes at different ages.

Keep Your Life On Line (Teenagers and Young People Living Positively with Diabetes) (2001)
Department of Endocrinology and Diabetes- Royal Children's Hospital- Melbourne
A video for parents and teenagers- with great graphics and a cool soundtrack.

Kids and Diabetes (1998)
Diabetes Australia- NSW
A small booklet- suitable as an introduction to diabetes in children.

Living with Diabetes and Coeliac Disease (2001)
Coeliac Society of Australia and Diabetes AustraliaNSW
An excellent guide to the food plan for those with diabetes and coeliac disease.

Physical as Anything. Collaborative Support for Students with Physical Conditions and Medical Disabilities (2001)
NSW Department of School Education and The Children's Hospital at Westmead
A valuable resource for schools in supporting students with physical disabilities and medical conditions- including diabetes. Available as a resource at schools in NSW.

Pumping Insulin (2000)
John Walsh and Ruth Roberts
Torrey Pines Press (ISBN 1 884804 84 5)
A very comprehensive book on all aspects of insulin pump therapy.

Raising a Child with Diabetes (1995)
Linda Siminerio and Jean Betschart
American Diabetes Association (ISBN 0 9454 4848 1)
General advice on how to cope.

So Your Child has Diabetes (1994)
Bonnie Estridge and Jo Davies
British Diabetes Association (ISBN 0 0917 7074)
Helping your child lead a normal- active life.

The Sun- the Rain and the Insulin (1995)
Joan MacCracken
Press of Maine (ISBN 0 9646 0185 0)
About a diabetes camp in the USA.

Sweet Kids (1996)
Betty Brackenridge and Richard Rubin
American Diabetes Association
How to balance diabetes control and good nutrition with family peace.

Taking Charge (1992)
Kay Kriegsman- Elinor Zaslow and Jennifer D'ZmuraRechsteiner
Woodbine House (ISBN 0 9331 4946 8)
Teenagers talk about life and physical disabilities- about communication- independence and family life.

Teenage Diabetes (1990)
Judith North
British Diabetes Association (ISBN 0 7225 1884 6)

The New Traffic Light Guide to Food (1997)
Diabetes Education and Assessment Program-
Royal North Shore Hospital- Sydney (ISBN 0 9593 8115 5)
An excellent and comprehensive guide to the carbohydrate content of food and healthy eating in diabetes.

What About Me? When Brothers and Sisters Get Sick (1992)
Allan Peterkin
Magination Press (ISBN 0 9453 54048 7)
Helps parents to help their children.

What You Need to Know About Diabetes (Video and booklet)
Juvenile Diabetes Foundation- Australia
Information for kids with diabetes and their parents- carers- teachers and friends.

The Internet

THERE is a large amount of information about diabetes on the Internet. Much of this is useful and interesting- but be aware that the quality of information can be very variable. Always look at the organisation that is running the site as this will be a guide to how reliable the information is likely to be. For example- sites such as the American Diabetes Association- Juvenile Diabetes Research Foundation- Diabetes Australia or those of major children's hospitals or universities are likely to be of high quality. A lot of what you may read on the Internet will apply to type 2 diabetes- so be careful to distinguish this. Companies that manufacture insulin and other diabetes products also have useful and informative web sites.

The diabetes team can direct you to some useful sites if you are interested. If you come across material you don't understand or that disagrees with what you have been told- discuss this with your diabetes team. If you don't have access to the Internet- don't worry. New developments and information are always available through your diabetes team who keep in close touch with the latest information and technology from around the world.

 

Last Updated 11-Jan-2006. Authorised by: Fergus Cameron. Enquiries: Web master.
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