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The Children’s Cancer Centre Parent Advisory Group (PAG), commonly called PAG, is made up of a number of parents or carers of babies, children or adolescents who are, or have been, treated for cancer or a haematological disease. Sometimes, children receive treatments commonly given to cancer patients, without themselves being diagnosed with cancer. Senior staff members representing the various disciplines of care that make up the CCC are also members of the PAG. The chair of the group is always a parent.
The PAG is devoted to continually improving the care provided to all babies, children and adolescents suffering from cancer, or who otherwise receive treatment in the CCC. We are guided by the principles of Patient and Family Centred Care which include; dignity and respect, information sharing, collaboration and participation.
Our team consists of parents and CCC staff members who care about and wish to improve the care provided to our children. The parent members of the PAG have personal experience of living with and caring for children undergoing treatment in the CCC.
Anne’s daughter was treated for Hodgkin’s lymphoma during high school years 11 and 12. She recently graduated from university in America. Anne is a member of the Parents' Advisory Group and a consumer cancer research grant assessor for Cancer Australia's Priority-driven Collaborative Cancer Research Scheme and chair of ANZCHOG National Patient and Carer Advisory Group. Life before lymphoma kept me busy and full filled as an English as a Second Language teacher in Japan and later in Melbourne tertiary administrative roles.
Kimberly has spent many years working as a health professional in both acute and community health care settings. Since her son's diagnosis early in 2007, she now feels privileged to be able to offer her health professional input into ensuring all children receive optimal care during their stay within the Children's Cancer Centre.
Cameron has been involved in PAG since early 2014 following his child's treatment for cancer at RCH. He is committed to assisting children and families navigate the difficult challenges of the treatment process.
Tom's daughter was diagnosed with acute lymphoblastic leukaemia at 5 years of age. She commenced chemotherapy and other treatment in the CCC in February 2004. She has been 'off-treatment' for many years, and is now part of the Long Term Review program at the Monash Medical Centre. Tom's daughter is an active and healthy adolescent who enjoys her studies at secondary school.
Gavin joined the parent advisory group in 2011 following the 2nd treatment to his teenage daughter Sarah for Hodgkins Lymphoma. He works in community services as a director of mission and has a corporate IT background but one of the most important aspects he brings is as a father. He enjoys spending time on the ward and day oncology with other parents and particularly seeks out other fathers to give them a safe place to talk about their experiences. His daughter Sarah is now studying Primary Teaching at ACU.
If you have experience as a parent or carer of a child who has undergone treatment or is currently being treated at the CCC; You may be an ideal candidate to join the PAG.
The PAG invites parents or carers of current or former patients of the CCC to join the Group. We seek Parent Members from a wide range of social, economic and cultural backgrounds, to fully reflect the diversity within the backgrounds of our children. The parents or carers of patients who undergo treatment in the CCC accumulate a wealth of experience in coping with the serious illness of their child. They have a great deal to contribute in assisting the parents or carers of current CCC patients by making use of their own experience as the carers of sick children, and also by making use of their other professional experiences in disciplines such as nursing, education, community services, law, counselling, management, finance, hospitality, full-time parenting, volunteer work, and so on.
If you are interested in joining our team please contact one of our team members below, and fill out an application form.
Children's Cancer Centre Community Liaison Manager
Royal Children's Hospital Parent
Phone: 0419 344 044
Royal Children's Hospital Parent
Phone: 0412 379 614
Monash Medical Centre Parent
Phone: 0413 651 215
Please send us your
feedback, input, comments and suggestions.
Please note that it is not necessary to identify yourself. However, we would encourage you to provide your name and contact details so we can confirm the receipt of your communication, and provide you with specific updates. To ensure a timely response to your issue, your communication will be forwarded to two parent representatives and the Community Liaison Officer, who is an employee of the RCH. If you would prefer to communicate with a parent representative only, please contact one of our parents listed above. Please note that if this is your preference, it may take a little longer to respond to your communication.